two months

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Abnormal, painful, heavy and/or irregular menstruation.

Intense abdominal pain and cramping outside of period.

Fatigue, bloating, nausea.

These are the vague symptoms you will find if you Google endometriosis.

Endometriosis occurs when the endometrium tissue lining the uterus is found around the organs, pelvis and other areas of the body instead of being shed during monthly menses. This causes scar tissue, chronic debilitating pain, mood swings, anxiety, depression, infertility, body image issues just to name a few symptoms.  No one brings up night sweats, blood clots, or nausea. How about chest pain, shortness of breath, rapid heartbeat and dizziness. I bet you didn’t know that knee pain, back pain, certain food intolerances, and vitamin deficiencies are also associated with endometriosis.

Many women (including myself) suffer in silence and the usual timeframe for diagnosis is 10 years, as it is difficult to detect. Endometriosis is incurable. 

No one tells you how it happens, about the days you will cry because you are in intense pain or how many times you will have to call in “sick” to work with no real explanation of what the heck is going on with you. I am constantly faced with physical pains that I can’t control even with the strongest painkillers.

I can date my symptoms back ten years ago.  I was only thirteen and had to make an appointment with a gynecologist. While I won’t mention this well-known doctor’s name, she brushed it off saying, “It was just a part of becoming a woman.”‘ Uh, yikes ok. 

So I went on accepting this as my truth. Accepting the days of sitting in class pretending I felt okay that extended well into my working years. Calling in sick makes me feel guilty because my boss or co-workers don’t always understand what I’m going through and I often think I’m letting them down.

As the years went by, sometimes I would mention it here and there to doctors and they would act nonchalant as if living with this pain and discomfort was something I could get by with.

The final straw was when my previous doctor told me I was ovulating and it would pass. When I insisted differently, she suggested we change my birth control. Not only would this wreak hormonal havoc on my body, but I also knew it wasn’t the answer. So I stood up for myself. I said no.

I kicked her to the curb and demanded she refer me elsewhere.

I couldn’t do it anymore.

So after countless dollars spent on wasted doctor’s appointments, I saw a leading physician specializing in endometriosis. She suggested I have a laparoscopic procedure because she was sure I had endo.

I was overwhelmed. After I stopped ugly crying, I realized I was relieved. Finally. Vindication. Confirmation. I am believed.

I told a select few people.

What will you do? Make sure you do it. Are you going to do it? I don’t think you’ll do it. Please do it. Have you tried yoga? Have you considered meditation? Have you tried not eating dairy? How about nutrition? Medication is bad for the body and you’re an addict. All those chemicals. You can’t take that. What are you going to take instead? Can you have babies? Are you infertile? You should have a baby. You should start having babies. Why aren’t you having babies? Are you better? We can’t wait for you to feel better —to get back to normal.

Normal is now tiredness. Exhaustion. It’s being slow. It’s feeling slow. Withdrawn. Feeling sick. I am sick. Always keeping it secret. F. Feeling small. Thinking about it. Thinking about pain. Always thinking about my body. Your body. Assessing every twinge, every tug, every pull, every ache. Waiting. Holding your breath and counting. Waiting for it to stop. To get worse. To come back again.

Two months ago today, I was first diagnosed and had a laparoscopy. My endo is so severe it caused organs to shift and tilt.

I am now faced with the harsh truth that the physical pain is paired with the emotional pain of the possibility of not being able to carry a child, my first surgery will probably not be my last and I am on a medication that has kicked my body into early menopause.

While the road ahead is difficult, I know had I not been an advocate for myself while sitting in a small cold exam room with nothing but a gown the quality of a cheap paper towel, I would still be suffering in silence.

Fortunately, I have learned the capacity of my strength and fortitude due to this disease.

If you’re a woman suffering from chronic, mystery pain that doctors are just shrugging their shoulders at, I hope you are inspired to be an advocate for yourself as well.

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I Hope I Call You

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This day holds a different gravity for all. I was in Birmingham waiting for my grandmother who was receiving chemotherapy at the time. Just a child who didn’t understand the impact of what I was watching on the television. The majority of us can recall where we were sitting when we heard.

Regardless of where we were that day, the resounding truth remains the same – in one single moment, your life may never be the same. 

What a day it is to honor those who lived and loved and fight for our freedom. My heart hurts at those still affected by the tragedies of this day. But what also hurts is the fact that sometimes, almost always, it takes a tragedy like this to remind us to cherish and enjoy every single moment. To really take in the air running through my lungs as I write this. To remind me to take a harder look at the smile lines on the face of the person I love, because it might be the last time I ever see them light up with laughter again. To cherish a kiss, to bask in the feeling as I snuggle with my nieces or to close my eyes and taste the warmth of my favorite cup of coffee.

The photo I included in this post, gets me every single time. Chills. I hope and pray Brian loved and prized Jules every second up until this moment. That the life they lived together with their family was full of nothing but precious memories for her to remember after he was gone. That they lived a life so full that it gave hope to everyone around them.

I sit back and think, am I taking even one second of my life for granted? Of course I am. We all do.

Ask yourself, “Am I living the life I love?”

If not, something has to give. It’s difficult to realize you aren’t living the best life possible. But boy, does it feel good when you take the steps to turn that around. When you take the steps to find your spark again and shine like you were meant to. It feels great when you sit back and soak in the moments and the people around you like never before because it feels like life couldn’t get any better.

Today and every day moving forward, I have to remember to make the best decisions based on my heart and what makes my cup full. I want to live my life to the fullest with the ones I treasure as long as I am here in the flesh.

Make that call. Send that text. Let them know how important they are to you.

You never know what tomorrow brings.

 

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Anonymous

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Do you ever feel hidden? Maybe you’ve moved to a new place, started a new school, accepted a new job. No one sees the extra hours you’re putting in at work or all the effort you put in around your house. Have you ever entered into a new season of life? Where you shifted from being recognized to feeling unknown. When we enter hidden seasons, we can be concealed for months or years and our potential seems to go into hibernation. We don’t know if spring will ever come and awaken us again. You may feel like you have so much more to give and be, but no one can see it but you.

There is one who can see it however. God himself. The beauty He sees in you doesn’t diminish by the season you’re in. Whether we enter hiddenness by our own deliberation (relocating for a new job) or unwillingly (grief following the loss of a loved one), we can spend years feeling that the greatest part of us is submerged in the unseen. Everyone can see only see the tip of the iceberg we really are.

We must remember the most influential person in all of history spent ninety percent of his life hidden. Only ten percent of His life was spent in the public eye. Yet all of his life He was and still is absolutely indestructible.  We know practically nothing about Jesus’ first 29 chapters of His life. Eighteen years after Jesus gets in trouble for staying in the temple, Jesus emerges from his hiddenness by the Jordan River for chapter 30.

When we say we want to “live like Jesus” most of us don’t mean the hidden years. We don’t want to spend 90% of our lives living anonymously. But Jesus embraced a life of hiddenness. These years empowered Him to live an eternally fruitful life.

Let’s consider human conception. Our lives commence in the darkness of the womb. We are knitted together but concealed. Unseen? Yes. Unimportant? Absolutely not. If this hidden phase of development is prematurely interrupted, the results can be tragic. From God’s perspective, anonymous seasons are sacred spaces. They are to be rested in, not rushed through and most definitely never regretted. Not applauded but not unproductive: hidden years are the surprising birthplace of true spiritual greatness.

In moments where I am tempted to wait on the “main” course of this life. You know, the “when we get married” or “when we start a family” or “when I get my master’s degree,” I remember that my time is not some filler. God waste’s no man’s time. To Him, every “course” in our life is the main course.

Let’s imagine something for a second. Jesus had God’s divine power and calling within him every day. He woke up each morning and lived in his town unnoticed for a long time. He was not free to proclaim his mission or destiny. Everyone else was only seeing the tip of the iceberg of who He was. Most of us struggle if our callings or dreams are delayed a year, much less twenty! But in anonymous seasons, we must hold tightly to the truth that Jesus was strengthened through his hidden years. Father God is neither care-less or cause-less with how He spends our lives. When He calls us to greatness and obscurity at the same time-if we wait for it- we can change the world.

In hidden years, we may press the question of whom we will let hold the clock for the rest of our lives. When God’s timing is not our timing, whose timing will we choose? Ultimately the answer to that question depends on whom we really trust. You have to decide Father always knows best, God’s ways are perfect, and that He is never, ever late.

If you feel hidden, you are in excellent company. Savor the season and its potential. When graced with hidden years, wait because He is worth it. Keep the waters of your spirit joyful and be still while you grow.

Recently, I started doubting why I had started blogging in the first place. I felt I wasn’t reaching anyone with my words. I felt anonymous. Just a few days later, I received a letter in the mail from someone who had read my blog and appreciated the words I wrote. It reminded me when God places a calling and talent on you, He will be faithful to grow you right where you are.

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Hugs

Do y’all like hugs? My sister doesn’t. She’s one of those people. She cringes up when you grab her in a big ole’ hug (I’m sure she’ll love me telling y’all that). As long as I can remember, she’s been that way. The rest of my family however, we’re the hugging kind.

Hugs transfer energy and gives someone an emotional lift. It can say things you just don’t  have the words for.

Sometimes you just need to give a hug. Or to receive one. Someone gets married? Give em’ a hug? Haven’t seen your best friend in forever? Give em’ a hug. When someone dies? You offer their family and friends hugs.

Next week marks the anniversary of a season of grief my family and I entered into. A season where we got used to a lot of hugs. Between the funerals and visiting with family and friends, it was one after another.

One year ago, my feisty grandmother, Dorothy passed away. One of my fondest memories of her is when I would get to her house and she would be sitting in her old, worn down chair that’s probably been there since before I was born, with an afghan across her lap and she’d say “Come here and give me a hug, AJ.” Before I’d leave, she would say the same thing. Her hugs felt like home. They were warm and comforting.

One month after her death, my precious niece passed away. My sister, you know- the one who hates hugs, had to get used to them quickly. We had spent days together before the funeral and hadn’t exchanged a single hug. But after the services, I walked up to her crying and she just embraced me. That’s something I will remember forever.

The very next month, my Grannie- Miss Virginia, went to Heaven as well. Her hugs felt like Sunday mornings and Christmas dinner all wrapped into one.

Just a few days ago, a high school classmate passed away in a tragic car accident. Our small class of forty people gathered together. Most of us hadn’t seen each other in years. We came together to celebrate his life. We came together to comfort each other. At the graveside service, his brother spoke words I will remember for the rest of my life. He said recently, they had exchanged one of four hugs in their entire lifetime-something he would cherish forever.

I’d give a lot to hug those people one last time. I challenge you today, to hug someone you love. To give them one of those hugs that you’d remember forever if you never saw them again here on this earth. You know the kind I’m talking about.

Sometimes in the middle of darkness, it’s hard to see the other side. But as a child of God, we have to remember, the battle is the Lord’s. There is joy in the middle of sorrow. There is peace in the storm. There is hope for tomorrow. Even as the storm of tragedy and grief are raging around you, stand and know you have not and never will be forsaken.

Who brings light to the morning? It’s no other than God, and as surely as the sun rises, God will come and bring joy and peace.

 

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